A new PwC market research study shows that Consumers use Social Media far more than Health Companies.
Patients are turning to the Internet and Social Media to find solutions to health problems when their doctors don’t know the answers. While some docs are overwhelmed with new literature about medical advancements and resent patients who question their advice, others welcome the self-educated patient who has found treatment alternatives online and wants to discuss them. If you’re one of those e-patients and have used social media to connect with others like you to exchange stories and knowledge, I want to hear how you did it.
Did you use an online support group like e-Patients.net, PatientsLikeMe.com, and WebMD.com? Did you stumble upon a technology solution by landing on a website for a specific product or service? Did you use a smartphone app? Toni Bernhard uses Facebook Groups for this. Do you?
Why I ask… Modern Health Talk is positioned between these extremes, at the intersection of several important trends, including rising costs, aging baby boomers, wireless Internet access, telemedicine, and increased interest in social media, digital sensors, telepresence, and smartphones & tablets. BUT… We’ve found that the good online support groups focus on a single medical condition and NOT the combination of conditions and limitations associated with aging. We so far have been unable to build a vibrant community that engages the elderly in discussions of tech solutions for aging and want to learn from the success of others, potentially partnering with them. So please share your experience by email or a comment below.
e-Patient Katherine Leon
Below, NPR reports on patients with rare diseases who are finding each other online and promoting new research. The story features Katherine Leon, a woman with an extremely rare heart condition who managed to do what many hospitals couldn’t. She set up a virtual patient registry, allowed patients from all over the world to submit their medical records and scans online, and then used the data to convince researchers at the Mayo Clinic to run clinical trials where there was no interest before. Her story became national news. Read More …