Online & Support Groups

support

AARP Caregiving
Includes information on Nursing Homes, Alzheimer’s Disease, At-Home Care, Caregivers, Caring For Parents, Assisted Living and more

AARP Long Term Care Calculator
Fill in this form to calculate the cost of institutional medical care

AbledBody
This news & media website serves the 54 million Americans and 20 million families touched by physical or mental disability. It’s a place where consumers can read the latest disability-related happenings in technology, workplace, design and life/culture.

AgingCare.com
An online community connecting people who care for elderly parents to other caregivers, personalized information, and local resources

AgingInPlace.com
A resource for people desiring to age the safety and comfort of home (wherever they call home). It’s a clean website by Critical Care Nurse, Patrick Roden, who holds a PhD in Human Development and Aging.

Aging-in-Place at home
Age-in-Place Products, Services, Ideas & Solutions. This website shows the benefits of universally designed housing & products, telecare technologies, and other assistive products.

Aging in Place Daily News
This daily newspaper is automatically generated by Twitter and Facebook postings.

Aging in Place Workbook
The MetLife Mature Market Institute presents this 16-page PDF guide to walk you through the the important steps and considerations as you look to make your home into a care setting.

Aging Parents and Elder Care
Provides elder care articles, advice, caregiving tools, support group, checklists and more for all stages of elderly aging and senior care

Alzheimer’s Association
Global voluntary health organization in Alzheimer care and support, and a private, nonprofit funder of Alzheimer research

Ambient Assisted Living Joint Programme
The objective of the AAL JP is to enhance the quality of life of older people and strengthen the industrial base in Europe through the use of Information and Communication Technologies (ICT).

American Association for Respiratory Care
A not-for-profit, professional organization of 40,000 respiratory therapists, physicians, and other health care professionals

American Cancer Society
A nationwide community-based voluntary health organization dedicated to helping persons who face cancer and saving lives by helping people stay well, get well, find cures and fight back. Supports research, patient services, early detection, treatment and education. 

American Diabetes Association
Seeking to prevent and cure diabetes and to improve the lives of all people affected by diabetes

American Heart Association
Seeking to build healthier lives, free of cardiovascular diseases and stroke

American Hospice Foundation
Seeking improve access to quality care & support of dying and grieving people of all ages

American Lung Association
Fighting for Air and working to save lives by improving lung health and preventing lung disease through Education, Advocacy and Research

American Society on Aging
Membership association working to enhance the knowledge and skills of those who seek to improve the quality of life of older adults and their families

American Stroke Association
Dedicated to prevention, diagnosis and treatment of strokes, America’s No. 3 killer and a leading cause of serious disability

American Telemedicine Association
ATA is an industry association promoting improvement in health care delivery through telecommunications and information technology.

Angie’s List
Find, rate and compare home service companies, medical facilities, and healthcare practitioners. Because you can easily tell thousands of other members about your experiences with a company, that’s great news for the companies that do good work – and not so great news for the companies that don’t – so members often get better service.

Asbestos.com, The Mesothelioma Center
Primarily caused by asbestos exposure, mesothelioma is a cancer that affects the lining of the lungs or abdomen and in some cases the lining of the heart. Symptoms resemble less serious conditions, which usually contributes to a late diagnosis. The Mesothelioma Center offers assistance through reading materials, a Doctor Match program, and Patient & Family Advocates that are available to discuss support options and answer your questions.

Benefits Check Up
A service of the National Council on Aging providing information about Benefit programs for seniors with limited income and resources

CAPS: Children of Aging Parents
CAPS assists the nation’s nearly 54 million caregivers of the elderly or chronically ill with reliable information, referrals, support, and heightened public awareness that the health of the family caregivers is essential to ensure quality care of the nation’s growing elderly population.

The Caregiver Partnership
A national retailer of home healthcare products such as adult diapers and incontinence supplies. They offer a well organized set of resource links and tips for managing urge urinary incontinence for those seeking medical evaluation and treatment.

Center for Connected Health
Founded in 1995 by Harvard Medical School teaching hospitals, the Center for Connected Health develops new strategies to move health care from the hospital and doctor’s office into the day-to-day lives of patients. Leveraging information technology — cell phones, computers, networked devices and simple remote monitoring tools — the Center helps providers and patients manage chronic conditions, maintain health and wellness, and improve adherence, engagement and clinical outcomes.

Center for Inclusive Design and Environmental Access (IDEA)
University at Buffalo School of Architecture & Planning is dedicated to making environments and products more usable, safer and healthier in response to the needs of an increasingly diverse population.

Center for Long Term Care Research and Policy
New York Medical College’s Center focuses on health care disparities, health care needs and caregiving across the lifespan and to promote fair and equitable financing of long-term care in the United States.

The Center for Social Gerontology
A non-profit research, training and social policy organization dedicated to promoting the individual autonomy of older persons and advancing their well-being in society

Direct Care Alliance, Inc.
This national advocacy voice of direct care workers in long-term care, working for better wages, benefits and training.

Disability Resources
This non-profit organization monitors, reviews, and reports information about resources for independent living. Their mission is to promote and improve awareness, availability and accessibility of information that can help people with disabilities live, learn, love, work and play independently.

ElderCareLink
A private referral service that helps caregivers and families find the right eldercare options in their area.

Family Caregiver Alliance
The FCA is an organization that supports individuals and their family caregivers with a website that provides state-specific info on a variety of topics, services and resources.

Geriatric Mental Health Foundation
Working to raise awareness of psychiatric and mental health disorders affecting the elderly, eliminate the stigma of mental illness and treatment, promote healthy aging strategies, and increase access to quality mental health care for the elderly.

Getting Started with Home Care
a free publication of HANCI, Health Association of Niagra County, Inc.

Good Samaritan Society
Evangelical Lutheran non-profit with a mission of providing shelter and supportive services to older persons and others in need.

GracefulAging.com
America’s leading video network for boomers and older adults. Discover great ways to a vibrant senior life and gain important caregiver advice on eldercare. Stay informed on assisted living. [You can also search YouTube.com for videos on a great many topics.]

HealthCare.gov
This government website is managed by the U.S. Department of Health & Human Services to help you take health care into your own hands. Find insurance options. Learn about prevention. Compare care quality. Understand the law.

HealthcareAndYou.org
Information to help individuals, families, small business owners and health care professionals understand the health care law. The Health Care and You Coalition is made up of some of our country’s leading organizations that represent consumers, patients, physicians, nurses, hospitals and pharmacists.

HelpingYouCare
A Comprehensive Caregiver’s Resource, Support Community & Your Voice for Health Care Reform.

HIPAA Basics
2-page PDF flyer from the Alliance for Parent Centers

Home Care Technology Association of America (HVTAA)
Whether it is urging Congress to recognize home telehealth interactions as bona fide Medicare services or provide financial assistance to home care agencies to adopt health information technology (HIT) and implement electronic health records (EHR) or reimburse appropriate self-care technologies or finance a resource center for home telehealth technologies, the HCTAA is at the forefront of advocating for the advancement of technology in home health care.

Innovating the Future: HUMANA’s Dream of Life-long Well Being
38-page PDF of a Joan Kelly’s March 2011 presentation, from Aging / The Future Technology Challenge

Light & Health Research Foundation (SOLG)
About the influence of Light on your sleep quality and overall health (CLICK British flag at top/right for English version)

Mayo Clinic’s social network
An online health community where members share their experiences and connect with others who’ve faced similar experiences.

Mesothelioma Cancer Alliance
A leading web resource for those affected by asbestos cancer.

MesotheliomaTreatment.net
This terminal cancer is often caused when contaminants such as asbestos are inhaled or otherwise ingested.

MetLife Mature Market Institute
Groundbreaking research, gerontology expertise, national partnerships, and educational materials

mHealth Alliance
Mobilizing Innovation for Glogal Health and working with diverse partners, the Alliance serves as a convener for the mHealth community to integrate mHealth into multiple sectors and overcome common challenges by sharing tools, knowledge, experience, and lessons learned.

Mobile Health Association
Providing benefits and networking for entrepreneurial minds in the mobile health ecosystem.

National Academy of Elder Law Attorneys, Inc.

A professional association of attorneys dedicated to improving the quality of legal services provided to seniors and people with special needs

National Alliance for Caregiving
A non-profit coalition of national organizations focusing on issues of FAMILY caregiving.

National Alliance for Hispanic Health
Advocates on behalf of Hispanics, help health and human service providers deliver quality, culturally-proficient care, and promote philanthropy.

National Association of Area Agencies on Aging
The umbrella organization for our nation’s 629 area agencies on aging. The Web site allows you to search for a local area agency on aging to help with home healthcare resources.

National Association for Home Care
Trade association representing the interests of home care agencies, hospices, and home care aide organizations

National Association of Professional Geriatric Care Managers
A geriatric care manager is a professional such as a nurse or a social worker who can assist with evaluating care needs, identifying community resources, and implementing and monitoring a care plan. Their Web site has searchable data to see if there is a care manager in your area.

National Center for Healthy Housing
NCHH brings the public health, housing, environmental, and regulatory communities together to combat disease and injuries caused by hazards in the home.

National Clearinghouse on the Direct Care Workforce
An online library for materials related to the direct-care workforce

National Council on Aging
NCOA is a national advocacy voice for older adults—especially those who are vulnerable and disadvantaged—and the community organizations that serve them.

National Family Caregivers Association
NFCA educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age.

National Guardianship Association, Inc.
Working to advance the nationally recognized standard of excellence in guardianship

National Organization on Disability
NOD is a private, non-profit organization that promotes disability employment and the full participation of America’s 54 million people with disabilities in all aspects of life.

National Parkinson Foundation
Working to address the unmet needs in Parkinson’s care and treatment. Parkinson’s disease is the second most common neurodegenerative disease after Alzheimer’s, affecting about one million people in the United States and an estimated four million worldwide.

National Policy & Resource Center on Nutrition & Aging
An initiative of Florida International University, working to increase food and nutrition services in home and community-based social, health, and long-term care systems serving older adults

National Prevention Strategy (17:23 min YouTube video)
The U.S. Surgeon General talks about how preventive health care can help fight leading causes of death, and why it’s so hard for doctors to provide it. She presents America’s Plan for Better Health and Wellness.

National Private Duty Association
This website helps you find a trusted and reliable home care provider in your area or learn more about private pay home care.

National Sleep Foundation
Alerting the public, healthcare providers and policymakers to the life-and-death importance of adequate sleep is central to the mission of NSF. NSF is dedicated to improving the quality of life for Americans who suffer from sleep problems and disorders.

New LifeStyles
Whether looking for a nursing, retirement, or assisted living community, home care or something else, New LifeStyles can help seniors and their loved ones make the best decisions to fit their needs.

New Public Health
Funded by the Robert Wood Johnson Foundation, New Public Health is a website and blog designed to spark an ongoing conversation about public health challenges, opportunities, evidence, solutions and innovations.

NORC Aging in Place Initiative
In general, NORC Supportive Service Programs unite housing entities, health and social service providers, government agencies, philanthropic organizations, community organizers and planners, older adults, family caregivers, and other community stakeholders.

ParentGiving.com
An online store to help time-starved caregivers provide better care for their aging parents by providing: in-depth information and helpful checklists about a variety of caregiving topics; on-call professional care managers who possess the expertise and experience necessary to help navigate through the maze of caregiving; and a more enlightened shopping experience at the Shop Parentgiving store, where family caregivers can learn about and shop for the products and supplies that best fit their aging parents’ needs.

The SCAN Foundation
Advancing a sustainable continuum of care that improves outcomes, encourages independence, and reduces overall costs. Encouraging public policy reform to raise awareness and integrate funding of acute and long-term care and promote the development of coordinated, patient-centric care.

SecondAct
An online destination tailored to the needs and interests of readers over age 40, its mission is to provide the inspiration, information and hands-on know-how you’ll need to get the most out of life in the years leading up to and following retirement.

SeniorsForLiving
A website, blog and free service that helps you and your family research, evaluate, contact, and compare Senior Housing options.

Senior Homes and Senior Care
A resource for finding local senior homes by zip code, with comprehensive information on nursing homes, assisted living, memory care and retirement communities, as well as articles on important senior housing topics to help you through your search.

Society for Participatory Medicine
Participatory Medicine is a cooperative model of health care that encourages and expects active involvement by all connected parties (patients, caregivers, healthcare professionals, etc.) as integral to the full continuum of care. The ‘participatory’ concept may also be applied to fitness, nutrition, mental health, end-of-life care, and all issues broadly related to an individual’s health.

Social Security Administration
The official website of the U.S. Social Security Administration

Third Age
An online life-stage media, marketing and consumer insight company focused exclusively on serving baby boomers with Health, News, People, and Lifestyle information.

Today’s Caregiver Magazine
Caregiver Media Group produces Today’s Caregiver magazine, the first national magazine dedicated to caregivers, the “Fearless Caregiver Conferences”, and our web site, caregiver.com which includes topic specific newsletters, online discussion lists, back issue articles of Today’s Caregiver magazine, chat rooms and an online store.

United Cerebral Palsy
UCP is a leading service provider and advocate for children and adults with disabilities. UCP strives to ensure the inclusion into every facet of society – from the web to the workplace, from the classroom to the community – to ensure a life without limits for people with disabilities.

Well Spouse Association
This nonprofit 501(c)(3) membership organization advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner.  They offer peer to peer support and educate health care professionals and the general public about the special challenges and unique issues “well” spouses face every day.

World Health Organization promotes Health & Human rights
WHO says the world needs a global health guardian, a custodian of values, a protector and defender of health, including the right to health, because the enjoyment of the highest attainable standard of health is one of the fundamental rights of every human being.

 


Note that many of the websites listed include their own resource lists, so be sure to look there too. And of course you can do an online search search engine.

 

 

 

Print, Email & Share:
  • Print
  • email
  • Twitter
  • Facebook
  • LinkedIn
  • RSS
  • Yahoo! Buzz
  • del.icio.us
  • Google Bookmarks
  • Digg
  • Reddit
  • StumbleUpon
  • Posterous
  • Technorati

One Response to “Online & Support Groups”

  • Saint Joseph Health System includes Flaget Memorial Hospital, Bardstown; Saint Joseph London; Saint Joseph Martin; Saint Joseph Hospital, Saint Joseph East and The Women’s Hospital at Saint Joseph East, Lexington; Saint Joseph Berea; Saint Joseph Jessamine and Saint Joseph Mount Sterling. The system has 917 licensed beds and approximately 5,000 employees and 1,300 physicians on its medical staffs. Combined, the member facilities have been recognized over 20 times as being among the 100 Top Hospitals in the nation by Thomson Reuters, and all Saint Joseph Health hospitals have received accolades for service excellence under the J.D. Power and Associates Distinguished Hospital Program.

Leave a Reply

Follow Us
Twitter (@mhealthtalk)
Facebook (Please LIKE us)
Google+ (why)
RSS (real simple syndication)
Weekly Newsletter (on paper.li)
  Learn about our Consulting Services

Modern Health Talk is a nominee in the SeniorHomes.com Best of the Web 2012

eLocal Home Improvement Badge

Listen to Us (radio interview)
@mhealthtalk Recent Tweets