Online & Support Groups

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AARP Caregiving
Includes information on Nursing Homes, Alzheimer’s Disease, At-Home Care, Caregivers, Caring For Parents, Assisted Living and more

AARP Long Term Care Calculator
Fill in this form to calculate the cost of institutional medical care

A Place for Mom
Search by zip code for Senior Living, Assisted Living, Independent Living, Nursing Homes, and Alzheimer’s Care.

AbledBody
This news & media website serves the 54 million Americans and 20 million families touched by physical or mental disability. It’s a place where consumers can read the latest disability-related happenings in technology, workplace, design and life/culture.

AdultDayCare.org
They offer a nationwide directory of adult day care centers that you can search by zip code or city, in addition to a blog and other content about senior care and adult day care industries.  By utilizing adult day care, many seniors can remain living independently longer, without having to move into an assisted living or skilled nursing facility. The time spent at an adult day care not only offers social interaction and supervision for the elder, it gives the caretaker time for their own needs.

AgingCare.com
An online community connecting people who care for elderly parents to other caregivers, personalized information, and local resources

AgingInPlace.com
A resource for people desiring to age the safety and comfort of home (wherever they call home). It’s a clean website by Critical Care Nurse, Patrick Roden, who holds a PhD in Human Development and Aging.

Aging-in-Place at home
Age-in-Place Products, Services, Ideas & Solutions. This website shows the benefits of universally designed housing & products, telecare technologies, and other assistive products.

Aging in Place Daily News
This daily newspaper is automatically generated by Twitter and Facebook postings.

Aging in Place Workbook
The MetLife Mature Market Institute presents this 16-page PDF guide to walk you through the the important steps and considerations as you look to make your home into a care setting.

Aging Parents and Elder Care
Provides elder care articles, advice, caregiving tools, support group, checklists and more for all stages of elderly aging and senior care

Alzheimer’s Association
Global voluntary health organization in Alzheimer care and support, and a private, nonprofit funder of Alzheimer research

Alzheimer’s Foundation of America
AFA unites more than 1,600 member organizations from coast-to-coast that are dedicated to meeting the educational, social, emotional and practical needs of individuals with Alzheimer’s disease and related illnesses, and their caregivers and families.

Alzheimer’s Disease
World Report 2013

Alzheimer’s Reading Room
Promoted as the number one source of Alzheimer’s information and information on dementia, health, memory loss, and treatment for the entire Alzheimer’s and Dementia community worldwide. The goal of the Alzheimer’s Reading Room is to Educate and Empower.

Ambient Assisted Living Joint Programme
The objective of the AAL JP is to enhance the quality of life of older people and strengthen the industrial base in Europe through the use of Information and Communication Technologies (ICT).

American Association for Respiratory Care
A not-for-profit, professional organization of 40,000 respiratory therapists, physicians, and other health care professionals

American Cancer Society
A nationwide community-based voluntary health organization dedicated to helping persons who face cancer and saving lives by helping people stay well, get well, find cures and fight back. Supports research, patient services, early detection, treatment and education. 

American Diabetes Association
Seeking to prevent and cure diabetes and to improve the lives of all people affected by diabetes

American Foundation for the Blind (AFB.org)
AFB serves people with vision loss, removing barriers, creating solutions, and expanding possibilities so they can achieve their full potential.

AFB Access World
AW, by the American Foundation for the Blind, provides Technology News for people who are blind or visually impaired.

American Health Journal
The American Health Journal is a health care television program that airs on PBS and other national network affiliates. Their website includes thousands of short videos.

American Heart Association
Seeking to build healthier lives, free of cardiovascular diseases and stroke

American Hospice Foundation
Seeking improve access to quality care & support of dying and grieving people of all ages

American Lung Association
Fighting for Air and working to save lives by improving lung health and preventing lung disease through Education, Advocacy and Research

American Society on Aging
Membership association working to enhance the knowledge and skills of those who seek to improve the quality of life of older adults and their families

American Stroke Association
Dedicated to prevention, diagnosis and treatment of strokes, America’s No. 3 killer and a leading cause of serious disability

American Telemedicine Association
ATA is an industry association promoting improvement in health care delivery through telecommunications and information technology.

Angie’s List
Find, rate and compare home service companies, medical facilities, and healthcare practitioners. Because you can easily tell thousands of other members about your experiences with a company, that’s great news for the companies that do good work – and not so great news for the companies that don’t – so members often get better service.

Asbestos.com, The Mesothelioma Center
Primarily caused by asbestos exposure, mesothelioma is a cancer that affects the lining of the lungs or abdomen and in some cases the lining of the heart. Symptoms resemble less serious conditions, which usually contributes to a late diagnosis. The Mesothelioma Center offers assistance through reading materials, a Doctor Match program, and Patient & Family Advocates that are available to discuss support options and answer your questions.

Assisted Living Facilities
They list information on over 36,000 state-licensed assisted living facilities and try to explain the rules and regulations of each state.

Benefits Check Up
A service of the National Council on Aging providing information about Benefit programs for seniors with limited income and resources

Be Smart. Be Well. 
This award-winning website delivers life-story videos, expert interviews and in-depth articles on a variety of important health topics in collaboration with the nation’s leading health organizations.

CareFlash.com
CareFlash provides patients and their loved ones a private & secure web community, featuring plainly narrated 3-D patient education resources, and rich features for engaging help from friends to assist through a health crisis or in eldercare.

CareForElders.org
CFE is Houston’s largest, most diverse and most experienced partnership focused solely on elder care issues. Uniting over 80 member organizations from the public, private and nonprofit sectors, Care for Elders is dedicated to informing public policy and influencing community practice to increase access to services, improve the quality of care, and enhance the quality of life for older adults and their families.

Caregiver.com
Caregiver Media Group produces “Today’s Caregiver” magazine, topic specific newsletters, online discussion lists, an online store, and a searchable list of regional resources.

The Caregiver Partnership
A national retailer of home healthcare products such as adult diapers and incontinence supplies. They offer a well organized set of resource links and tips for managing urge urinary incontinence for those seeking medical evaluation and treatment.

Care Planners
“We make things easier by providing you one-on-one expert support when you need it most and a set of tools to keep you organized.”

Caring for a Senior
Provides a directory of nearby care providers by zip code, as well as articles and resources to help you understand your in-home care options.

thisCaringHome.org
This Caring Home provides tips and tools to enhance home safety for persons with Alzheimer’s and other types of dementia. Highlights include: Virtual Home, Product Guides, and Videos & Animations.

Center for Connected Health
Founded in 1995 by Harvard Medical School teaching hospitals, the Center for Connected Health develops new strategies to move health care from the hospital and doctor’s office into the day-to-day lives of patients. Leveraging information technology — cell phones, computers, networked devices and simple remote monitoring tools — the Center helps providers and patients manage chronic conditions, maintain health and wellness, and improve adherence, engagement and clinical outcomes.

Center for Inclusive Design and Environmental Access (IDEA)
University at Buffalo School of Architecture & Planning is dedicated to making environments and products more usable, safer and healthier in response to the needs of an increasingly diverse population.

Center for Long Term Care Research and Policy
New York Medical College’s Center focuses on health care disparities, health care needs and caregiving across the lifespan and to promote fair and equitable financing of long-term care in the United States.

The Center for Social Gerontology
A non-profit research, training and social policy organization dedicated to promoting the individual autonomy of older persons and advancing their well-being in society

Center for Research and Education on Aging and Technology Enhancement (CREATE)
As a collaboration among three southern universities, CREATE strives to develop and evaluate interventions and design solutions to promote successful technology adoption among older adults.

Depression and Bipolar Support Alliance
A patient-run national mental health organization that sponsors support groups across the country and offers a comprehensive publications catalog.

Direct Care Alliance, Inc.
This national advocacy voice of direct care workers in long-term care, working for better wages, benefits and training.

Disability Resources
This non-profit organization monitors, reviews, and reports information about resources for independent living. Their mission is to promote and improve awareness, availability and accessibility of information that can help people with disabilities live, learn, love, work and play independently.

Dr. Koop
Offers consumer- friendly information and a Virtual Pharmacy that can help you evaluate the risk of harmful interactions among prescription medicines.

Eat Well Guide
Use this online resource to find fresh, healthy food & snacks while traveling on the road.

eHealth Forum
eHealth Forum is an online health community that attracts 2,300,000+ unique monthly visitors. The site hosts 200+ medical forums that generate user-based health information. The site is an interactive, 100% professionally moderated social network.

ElderCareLink
A private referral service that helps caregivers and families find the right eldercare options in their area.

E-Patients.net
E-Patients.net is the patient community of The Society for Participatory Medicine, a 501(c)3 public charity devoted to promoting the concept of participatory medicine by and among patients, caregivers and their medical teams and to promote clinical transparency among patients and their physicians through the exchange of information, via conferences, as well through the distribution of correspondence and other written materials.

Family Caregiver Alliance
The FCA is an organization that supports individuals and their family caregivers with a website that provides state-specific info on a variety of topics, services and resources.

Geriatric Mental Health Foundation
Working to raise awareness of psychiatric and mental health disorders affecting the elderly, eliminate the stigma of mental illness and treatment, promote healthy aging strategies, and increase access to quality mental health care for the elderly.

Getting Started with Home Care
a free publication of HANCI, Health Association of Niagra County, Inc.

Good Samaritan Society
Evangelical Lutheran non-profit with a mission of providing shelter and supportive services to older persons and others in need.

GracefulAging.com
America’s leading video network for boomers and older adults. Discover great ways to a vibrant senior life and gain important caregiver advice on eldercare. Stay informed on assisted living. [You can also search YouTube.com for videos on a great many topics.]

HealthBoards
Dealing with a medical condition is often difficult, and connecting with others who are going through the same thing can make a world of difference. With over 700,000 registered members and over 6 million monthly visitors, HealthBoards.com is a place where you can make those connections. It provides over 220 message boards on various diseases, conditions, and health topics.

HealthCare.gov
This government website is managed by the U.S. Department of Health & Human Services to help you take health care into your own hands. Find insurance options. Learn about prevention. Compare care quality. Understand the law.

Healthcare Blue Book
Use Blue Book to search your zip code and find fair prices for surgery, hospital stays, doctor visits, medical tests and much more.

HealthCentral
HealthCentral empowers people to improve and take control of their health and well-being through more than 35 condition-and wellness-specific interactive health sites, including #1 HIV/AIDS site TheBody.com and healthy living resource Wellsphere.com.

Health-Forums
A relatively small number of forums discussing Wellness.

HeartCenterOnline
Click on the Patients icon to read information and news about heart disease, risk factors, treatments, and patients’ stories. You can also sign up for their free weekly E-mail newsletter devoted to heart disease and treatments.

Heartmates
Heartmates offers online support to spouses and family members of people with heart disease. It’s geared more for wives of men with heart disease but still offers good advice, videos on recovery, and a helpful book, Heartmates: A Guide for the Spouse and Family of the Heart Patient.

The Heart Truth
A national awareness campaign of the National Heart, Lung, and Blood Institute of the National Institutes of Health, features the Red Dress as the national symbol for women and heart disease. View their materials online or call to order copies.

HelpingYouCare
A Comprehensive Caregiver’s Resource, Support Community & Your Voice for Health Care Reform.

Home Care Technology Association of America (HVTAA)
Whether it is urging Congress to recognize home telehealth interactions as bona fide Medicare services or provide financial assistance to home care agencies to adopt health information technology (HIT) and implement electronic health records (EHR) or reimburse appropriate self-care technologies or finance a resource center for home telehealth technologies, the HCTAA is at the forefront of advocating for the advancement of technology in home health care.

HomeHealthCareAgencies.com
Search for home care agencies in your area by zip code.

Leeza’s Place
Leeza’s Place is “A Place for Family Caregivers”; a community gathering place and resource center committed to providing free support services, resources and programs for family caregivers taking care of a loved one with a memory disorder or any chronic and/or progressive illness.

Light & Health Research Foundation (SOLG)
About the influence of Light on your sleep quality and overall health (CLICK British flag at top/right for English version)

LIVESTRONG FOUNDATION
This 501(c)(3) nonprofit offers practical information on what to expect from cancer. It looks at the experiences of the cancer community, finds problems, and develops solutions that it then rolls out to help others facing issues such as treatment concerns, emotional stress, insurance challenges, fertility preservation, and clinical trials. They have a free Guidebook and links to other online resources.

Mayo Clinic’s social network
An online health community where members share their experiences and connect with others who’ve faced similar experiences.

Meals-on-Wheels
Find a local Senior Nutrition Program by zip code. These programs provide well over one million meals to seniors who need them each day. Some programs serve meals at congregate locations like senior centers, some programs deliver meals directly to the homes of seniors whose mobility is limited, and many programs provide both services.

Mesothelioma Cancer Alliance
A leading web resource for those affected by asbestos cancer.

Mesothelioma Group
The Mesothelioma Group is a small team of healthcare professionals, patient advocates, and communication specialists with one goal: to lead the way in supporting and encouraging mesothelioma patients and their families. They do this through Education, Support Services & Financial Compensation.

Mesothelioma Guide
The mission of this free website is to guide mesothelioma patients and their loved ones toward answers, information, and healthcare solutions.

MesotheliomaSurvivors.org
Provides information for all aspects of this Asbestos-related disease and caregiving, from the leading medical information to real-life support for families and caregivers.

MetLife Mature Market Institute
Groundbreaking research, gerontology expertise, national partnerships, and educational materials

mHealth Alliance
Mobilizing Innovation for Glogal Health and working with diverse partners, the Alliance serves as a convener for the mHealth community to integrate mHealth into multiple sectors and overcome common challenges by sharing tools, knowledge, experience, and lessons learned.

Mobile Health Association
Providing benefits and networking for entrepreneurial minds in the mobile health ecosystem.

My Senior Care
Find senior living in your area by zip code.

National Academy of Elder Law Attorneys, Inc.
A professional association of attorneys dedicated to improving the quality of legal services provided to seniors and people with special needs

National Age in Place Council (AgingInPlace.org)
NAIPC a network of professionals from the private, public and non-profit sectors who can help you plan for your future housing and care needs.

National Alliance for Caregiving
A non-profit coalition of national organizations focusing on issues of FAMILY caregiving.

National Alliance for Hispanic Health
Advocates on behalf of Hispanics, help health and human service providers deliver quality, culturally-proficient care, and promote philanthropy.

National Association of Area Agencies on Aging
The umbrella organization for our nation’s 629 area agencies on aging. The Web site allows you to search for a local area agency on aging to help with home healthcare resources.

National Association for Home Care
Trade association representing the interests of home care agencies, hospices, and home care aide organizations

National Association of Professional Geriatric Care Managers
A geriatric care manager is a professional such as a nurse or a social worker who can assist with evaluating care needs, identifying community resources, and implementing and monitoring a care plan. Their Web site has searchable data to see if there is a care manager in your area.

National Center for Healthy Housing
NCHH brings the public health, housing, environmental, and regulatory communities together to combat disease and injuries caused by hazards in the home.

National Clearinghouse on the Direct Care Workforce
An online library for materials related to the direct-care workforce

National Council on Aging
NCOA is a national advocacy voice for older adults—especially those who are vulnerable and disadvantaged—and the community organizations that serve them.

National Family Caregivers Association
NFCA educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age.

National Guardianship Association, Inc.
Working to advance the nationally recognized standard of excellence in guardianship

National Organization on Disability
NOD is a private, non-profit organization that promotes disability employment and the full participation of America’s 54 million people with disabilities in all aspects of life.

National Parkinson Foundation
Working to address the unmet needs in Parkinson’s care and treatment. Parkinson’s disease is the second most common neurodegenerative disease after Alzheimer’s, affecting about one million people in the United States and an estimated four million worldwide.

National Policy & Resource Center on Nutrition & Aging
An initiative of Florida International University, working to increase food and nutrition services in home and community-based social, health, and long-term care systems serving older adults

National Prevention Strategy (17:23 min YouTube video)
The U.S. Surgeon General talks about how preventive health care can help fight leading causes of death, and why it’s so hard for doctors to provide it. She presents America’s Plan for Better Health and Wellness.

National Private Duty Association
This website helps you find a trusted and reliable home care provider in your area or learn more about private pay home care.

National Sleep Foundation
Alerting the public, healthcare providers and policymakers to the life-and-death importance of adequate sleep is central to the mission of NSF. NSF is dedicated to improving the quality of life for Americans who suffer from sleep problems and disorders.

National Women’s Health Information Center
The federal government’s main information site about women’s health issues.

National Women’s Health Resource Center
A national clearinghouse of women’s health issues.

New LifeStyles
Whether looking for a nursing, retirement, or assisted living community, home care or something else, New LifeStyles can help seniors and their loved ones make the best decisions to fit their needs.

New Public Health
Funded by the Robert Wood Johnson Foundation, New Public Health is a website and blog designed to spark an ongoing conversation about public health challenges, opportunities, evidence, solutions and innovations.

NORC Aging in Place Initiative
In general, NORC Supportive Service Programs unite housing entities, health and social service providers, government agencies, philanthropic organizations, community organizers and planners, older adults, family caregivers, and other community stakeholders.

ParentGiving.com
An online store to help time-starved caregivers provide better care for their aging parents by providing: in-depth information and helpful checklists about a variety of caregiving topics; on-call professional care managers who possess the expertise and experience necessary to help navigate through the maze of caregiving; and a more enlightened shopping experience at the Shop Parentgiving store, where family caregivers can learn about and shop for the products and supplies that best fit their aging parents’ needs.

PatientsLikeMe
At PatientsLikeMe, people with every type of condition are coming together in this membership-driven community to share their health experiences in discussion forums, find patients like them and learn how to take control of their health. The result is improved care for patients as well as an acceleration of real-world medical research.

POLITICO
Understand POLITICS and the HEALTH CARE SYSTEM

ProgramsForElderly.com
Programs for Elderly is designed to provide information and serve as a place where
Senior Citizens, Professionals, Caregivers, Families and Communities and can review featured worldwide senior programs.

R.A.R.E. Open Registry Project
The Rare Disease | Advocacy | Research | Education (RARE) Project exists to raise rare disease awareness, unify, equip, and empower a vibrant global rare disease community and fund innovations to support ‘in-their-lifetime’ rare disease research.

Rx List
Offers information on the 200 most-prescribed prescription medicines and describes their side effects, clinical studies, and dosage information. Also describes which health insurance companies carry these medicines on their lists of preferred medicines (called “formularies”).

The SCAN Foundation
Advancing a sustainable continuum of care that improves outcomes, encourages independence, and reduces overall costs. Encouraging public policy reform to raise awareness and integrate funding of acute and long-term care and promote the development of coordinated, patient-centric care.

SeeMyHeart.org
The American Society of Echocardiography created SeeMyHeart to help patients find information about echocardiograms, what they are, what they do and who does them.

Senior Resource
Billed as the “E-cyclopedia” of housing options and information for retirement, finance, insurance and care.

SeniorsForLiving
A website, blog and free service that helps you and your family research, evaluate, contact, and compare Senior Housing options.

Senior Helpers
Home healthcare franchise owners nationwide provide professionally trained caregivers to loved ones at home. They seem to specialize in supporting family members with dementia or Alzheimer’s.

Senior Homes and Senior Care
A resource for finding local senior homes by zip code, with comprehensive information on nursing homes, assisted living, memory care and retirement communities, as well as articles on important senior housing topics to help you through your search.

Shape Up America!
Consumer friendly site that offers helpful tips and programs for managing your weight and healthy eating.

Sharing Miracles
A forum for people to relate their own personal stories of hope and survival.

SkilledNursingFacilities.org
They offer a nationwide directory of over 15,000 nursing homes that you can search by zip code or city and provide detailed Medicare quality ratings, inspection information and filed complaints to help consumers research the best skilled nursing care options.

Society for Participatory Medicine
Participatory Medicine is a cooperative model of health care that encourages and expects active involvement by all connected parties (patients, caregivers, healthcare professionals, etc.) as integral to the full continuum of care. The ‘participatory’ concept may also be applied to fitness, nutrition, mental health, end-of-life care, and all issues broadly related to an individual’s health.

Teepa Snow
Teepa is a widely recognized expert in Alzheimer’s Disease. As an advocate for those living with dementia, she has made it her personal mission to help families and professionals better understand how it feels to be living with such challenges and seeks to change and improve life for everyone involved.

The Heart: An Online Exploration
The Franklin Institute’s online resource detailing the heart’s development and structure. Allows visitor to follow the blood through the blood vessels, wander through the weblike body systems, and offers information on how to monitor your heart’s health.

Third Age
An online life-stage media, marketing and consumer insight company focused exclusively on serving baby boomers with Health, News, People, and Lifestyle information.

Today’s Caregiver Magazine
Caregiver Media Group produces Today’s Caregiver magazine, the first national magazine dedicated to caregivers, the “Fearless Caregiver Conferences”, and our web site, caregiver.com which includes topic specific newsletters, online discussion lists, back issue articles of Today’s Caregiver magazine, chat rooms and an online store.

United Cerebral Palsy
UCP is a leading service provider and advocate for children and adults with disabilities. UCP strives to ensure the inclusion into every facet of society – from the web to the workplace, from the classroom to the community – to ensure a life without limits for people with disabilities.

WebMD.com
Providing valuable health information, tools for managing your health, and support to those who seek information.

Well Spouse Association
This nonprofit 501(c)(3) membership organization advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner.  They offer peer to peer support and educate health care professionals and the general public about the special challenges and unique issues “well” spouses face every day.

WikiDoc.org
WikiDoc allows a community of healthcare professionals to ‘co-create’ webpages in a way that does not require knowledge of HTML language or computer programming. As a result, numerous people can collaborate in writing articles, textbook chapters or news stories.

WomenHeart.org
WomenHeart is a nonprofit, 501(c)(3) patient advocacy organization with thousands of members nationwide, including women heart patients and their families, health care providers, advocates and consumers committed to helping women live longer, healthier lives. WomenHeart supports, educates and advocates on behalf of the 42 million American women living with or at risk of heart disease.

World Health Organization promotes Health & Human rights
WHO says the world needs a global health guardian, a custodian of values, a protector and defender of health, including the right to health, because the enjoyment of the highest attainable standard of health is one of the fundamental rights of every human being.

 


Note that many of the websites listed include their own resource lists, so be sure to look there too. And of course you can do an online search search engine.

One Response to “Online & Support Groups”

  • Saint Joseph Health System includes Flaget Memorial Hospital, Bardstown; Saint Joseph London; Saint Joseph Martin; Saint Joseph Hospital, Saint Joseph East and The Women’s Hospital at Saint Joseph East, Lexington; Saint Joseph Berea; Saint Joseph Jessamine and Saint Joseph Mount Sterling. The system has 917 licensed beds and approximately 5,000 employees and 1,300 physicians on its medical staffs. Combined, the member facilities have been recognized over 20 times as being among the 100 Top Hospitals in the nation by Thomson Reuters, and all Saint Joseph Health hospitals have received accolades for service excellence under the J.D. Power and Associates Distinguished Hospital Program.

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